the fog just got a little thicker

In my last post I talked about the difficulty in seeing the light at he end of the tunnel, the longed for EOT (end of treatment) date. I thought that date, for me, was in early February. Throughout my treatment I have avoided keeping close track of the timing. I know myself well enough to know that would lead me into familiar old patterns of obsession, frustration and the lovely bind of self indulgence;  picking at the wounds and wallowing in self pity for the scar that was created. So knowing this about myself, my penchant for teenage like angst, I decided to take the high road and simply get through this without minding the calendar.
Until recently that is... I'm really ready to be done with this. The physical and emotional toll is like being under a pile of rocks which each day has one more rock added to the pile. So at my last visit for my procrit shot I asked the my nurse for the actual EOT date. We had both thought it was sometime in February, but the news that it's actually one full month later was, well like having a couple of wheelbarrows of rocks heaped on the pile all at once.
To get through this, I bargain with myself, and I've been telling myself, Self, it's only a little over a month, we can do this. That day in the nurses office that part of myself I coddle and and bribe and cajole along pretty much collapsed into a pile of tears like a little kid. You know how they do it, as if their bones suddenly dissolved and their tear ducts have an automatic "drama alarm" which sets off an instant prolific flow. Meanwhile, Grown Up me ignores the kid having a fit in the corner, puts on her Mommy "everything is going to be ok face" and drags the snot faced boneless Little Jenny home.
Fast forward a couple of days and as is the course of nature the inevitable push and pull between Little Jenny and Mom Jenny gives rise to Angsty Adolescent Jenny! Ta Da!
My Therapist once described me as The Eternal Teenager. I was not offended at all, and not because of our youth oriented, plastic surgery obsessed culture. I admire teenagers, I've spent most of my life working with them. I love them for their defiance, their mistakes, their question authority attitude and their fierce quest to find themselves. Individuation, they call it, and it drives parents crazy.
One of the things that gets teenagers into trouble is they have a limited capacity to see the future, they live in the  moment, be it good or crappy. Sound familiar? Remember that fog that has been obscuring the "after treatment" possibilities? Well on that day in the nurses office the fog just rolled in a little thicker as Angsty Teenage Jenny took  over.
That's where I've been the past couple of days. Pissed off at the world. I watch the news and not only am I pissed at what I see, but I'm pissed at the way it's reported. I try to watch some videos of some of my favorite music and I realize two thirds of the musicians are dead...overdoses, car accidents you know the life.
I think I need to let go of the angst and just let that little kid cry and cry, but I'm afraid it won't stop.
I know this will pass, it always does, but for today I'm going to indulge my misery for a bit...I haven't decided how, but I don't have it in me to watch pretty little Marc Bolan and remember how his life was cut short by a car smashing into a tree. He didn't even drive.
xo
Jenny
© 2010 Jennifer Hazard

may cause, fatigue, weight loss and Existential Angst

I had my 6 month follow up with the Gastroentologist yesterday. I usually try to arrive prepared with what ever questions have been buzzing around my head recently.  I had asked ahead of time for them to count how many weeks I've put behind me and how many left to go.
When I arrived at my appointment I must have looked as vacant and vulnerable as I felt, because the nurses were especially compassionate. They  are always very caring and thorough, but they went the extra mile this time.  I've been having a few really difficult days, headaches, emotional turmoil, no appetite and financial concerns, so I was already dragging.  To add to my pre-existing frumpiness, all my jeans hang off me like some Urban teenage boy, only without the cool and swagger; quite a different view on on 51 year old white lady. Naturally first part of the visit was to get weighed, I lost five more pounds. Ironic, I've always been conscious about my weight, nearly to the point of anorexia in my younger years; but in the last year or two I've come to appreciate my middle aged body and even gave away my "skinny jeans" (thus reinforcing my pathological obsession with hanging on to nearly everything 'in case someone needs it someday') The next bit of news was that although my hemoglobin had gotten to a reasonable level, 10, after a few weeks of  'the-shots I-can-never-remember-the-name-of', it was now back down around 8. I had suspected this because I've found myself becoming more easily winded again.
So here I am at week 28 (if I was geno 2 or 3 I'd be home by now) instead my eta is sometime in January, I could figure the exact date but I'm not going to just yet.
Whatever it is it's not soon enough. My Doctor, who I do enjoy, spent about a good half hour giving me a pep talk..."more than halfway through".."you'll clear this forever"...you'll return to the old you within days of stopping treatment" with all due respect to, and belief in, the power of positive thinking....I'm well aware that there's somewhere between 30 and 50% chance the virus will return within a year or two, if not sooner and most of the people I know who have been through treatment report that it took months to feel better. Somewhere between Pollyannaish optimism and complete nihilism there exists an entire web of possibility. I usually believe in some combination of destiny and self-determination, but lately I often feel too tired, too vacant to throw my cards on the cosmic blackjack table of self determination  vs. Destiny, aka, the Dealer. For today anyway, I''m paying my respects and giving homage to Lady Luck to play a few hands for me.
© 2010 Jennifer Hazard
image courtesy of 'TheGraphics Fairy", graphicsfairy.blogspot.com/